Tuesday, October 23, 2012

Something About Lucy

I'm going to tell you something about Lucy.  My sweet Lucycakes has been struggling through some behaviors that I don't understand, for about a eighteen months now.  At first, I assumed she needed more attention during her mommy's difficult pregnancy.  I thought with a bit of extra attention & affection, she'd grow out of her little quirks.  It became clear that it was not a passing phase, so as time went on, I tried to discipline her out of it.  I used time-outs and eventually moved on to sticker charts.  The older and more verbally expressive she becomes, the more I realized that she is truly struggling with something else.  She is not like my other children in some ways, and as I think back on it, there have been some differences from infancy.  It isn't a behavior issue, it isn't bad parenting... Lucy may be dealing with a condition called Sensory Processing Disorder.

A lot of things I have read seem to fit her to a T.  However, some things don't fit the mold.  I don't know if she is dealing with anxiety due to trying to cope with her world, if she has some behavioral issues alongside her neurological condition, or if it is something else entirely.  I'm not a diagnostician and I obviously am not objective.

I am just really relieved to learn that there is a "name" for what she is suffering with, and that there are effective treatments that will allow her to make the connections she needs to make & go on to have a perfectly normal childhood.  I don't want her to be labeled a brat/naughty/crybaby... she isn't.  She doesn't process sensory information the same way we do.  The world can be an overwhelming and scary place for her.  As an adult, I would struggle with coping so I can only imagine how a toddler gets through the day!

Knowing that this is REAL and that I am not alone has helped me personally.  We have contacted the right people and filled out a bunch of paperwork in anticipation of a full battery of testing.  In a month or so, we will learn whether this is something I can help her through at home, something she needs occupational therapy for, or something she needs a special education program to help her through.

Out of respect for Lucy, I won't be going into detail about her particular issues.  However, this article can help you understand what sensory issues look like and how they impact our family:  http://www.huffingtonpost.com/2012/05/10/children-sensory-issues_n_1506341.html 

Thanks for your thoughts and prayers!  We are lucky to have Lucy.  Again, we are at the very beginning of the process so I can't say that this is definitely what she has, or the only thing she has.  No matter what "label" she has, she is a fun, funny, fantastic little girl and there is nothing I won't do to make sure she has the best.  Lucy is a delightful little lady to be around... she is engaging and very expressive, so I know she will help me to help her as time goes on.  :)


Aubrey said...

It's good that you have recognized that it's something more; this will help your whole family so much and Lucy too. I'm sad for her, that she must deal with this but happy for her that her parents are seeking help. :) Hang in there, Mama!

Jody said...

My son, Robbie, also had this diagnosis at the very beginning of our diagnostic journey. I know you love your Lucy, just like I love my Robbie, and you feel protective of her, like I do him. I am always so worried that people will think Robbis is a brat, and that I don't parent him well enough. And worse. And, in fact, I have had teachers in the public schools that have said as much, before the diagnosis AND after. So I have some idea of how difficult this is for you and your family. I love you, I admire you, and I will keep you and your family ever in my thoughts and prayers. Please feel free to email me or FB message me if you ever need to talk.

Colleen said...

With early intervention, children can learn to cope and move on from so many issues now. We've had a child get physical therapy, one get speech therapy, and now have another that needs speech therapy. You're doing the right thing getting her the help she needs now. Keep us informed and Lucy will be kept in our family prayers!

beccasfamilyof5 said...

Sorry to hear that you have been having so tough a time but a diagnosis and a way to move forward is a relief in itself sometimes. I am really pleased you are getting the right support for yourselves as well as Lucy. You have a beautiful family and she is incredibly loved, and you can have a lot of comfort in that. You will all cope but as a Mom, you will find the toughest bits. Keep strong and all the very best for the future. x

Teresa said...

It's interesting because a friend of mine just recently found out her twins had this. At least I think that's what it was. Then another friend child has an auditory sensory issue. I'm not sure that's in any way similar, but they are such special kids - just like your little girl. I hope you're able to get all the answers to questions you must have! (((hugs)))

Anonymous said...

My name is Morgana,

I wiss Lucy all the luck in the world!